Asperger's – A Disappearing Diagnosis?

In the world of Asperger’s, there has been a lot of buzz for the past two weeks. The NY Times published an article, “New Definition of Autism Will Exclude Many, Study Suggests”, and our inboxes were suddenly full. Everyone wanted to weigh in on this important moment in time … a time when the Asperger’s Diagnosis might disappear. Or will it? At Camp Akeela, many of our campers proudly wear the “Asperger’s badge” and feel like the diagnosis gives them a sense of identity. It makes them feel like they belong to something important. For many, it’s the only group with which they really identify.

Then they come to camp. Akeela provides our campers with an opportunity to belong to a community and to feel like they are a part of something bigger than themselves. Many of our campers do not have a diagnosis or they don’t identify with the one they were given. Nonetheless, they connect with one another. Does a diagnosis matter? Unfortunately, it does matter for practical purposes. Without a diagnosis, people worry that they will no longer get much-needed educational or psychological services (and funding). All children deserve the support they need to reach their optimum potential. It’s a shame that a diagnosis is what determines that. Wouldn’t it be nice if children were able to get the services they need without having to fight for them every step of the way? It would make such a difference if educators and those in the mental health fields understood the intricacies of the behaviors and emotions BEHIND the diagnoses they use to determine eligibility.

— Debbie and Eric